I have seen so much in the past three and a half years as a pediatric intensive care nurse. Sometimes patients and their families come in to our lives that we can't help but connect with, become friends with, and love. Macy and her family most certainly fall in to this category.
Everyone on the unit has fallen in love with this amazing girl and her family. Her mom, Kelly, was even the first person to share pictures on Facebook of Colin since we had managed to get to the hospital without a camera. Macy has a disease called Focal Segmental Glomerulosclerosis (FSGS). She has spent so much time in the hospital since she was diagnosed almost 2 years ago and her body is trying so hard to fight the disease. Despite all the different medical therapies that have been tried, she is going to go for a kidney transplant this summer. There is currently no cure for FSGS but NephCure is doing all they can to fund research and find a cure for the disease.
As a testament to how amazing Miss Macy is, when she was in the hospital one time, she received a handmade pillowcase from a family friend. She decided that every kid who was in the hospital should have a special pillow case and so Cases for Kids was created by her mom and dad. I have had the opportunity to make some of these pillow cases to donate and been able to see the pillow cases make our patients very happy. It's amazing how something so small can make such a big difference - and how a little girl who knows what it's like to be in the hospital started something so big to help other kids who had to be in the hospital.
Here is a video that was created about Macy and her fight with FSGS. I'll warn you, it may make you tear up (I all-out cried), but I ask that you watch it and if you have the opportunity, please donate to Team Macy in the NephCure Walk help find a cure for this disease.